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Featured Links

 www.nlm.nih.gov
National Library of Medicine

www.ncbi.nlm.nih.gov/pubmed
Biomedical journal literature from MEDLINE/PubMed

www.medlineplus.gov
Health and drug information for patients, family and friends

www.clinicaltrials.gov
Drug and treatment studies

Technology Products and Support

IntelliTools www.intellitools.com
The IntelliKeys adaptive keyboard is one of many products geared to the K-8 student.

Enabling Devices www.enablingdevices.com
Section on toys for special children.

Center for Computer Assistance to the Disabled www.c-cad.org
Includes many different vendors with a special section on output technology primarily for low vision and blind persons.

Kurzweil Educational Systems www.kurzweiledu.com
Software for the blind and visually impaired.

 

Disease Specific Resources

American Nystagmus Network (ANN) www.nystagmus.org

Association for Retinopathy of Prematurity & Related Diseases (ROPARD) - www.ropard.org

Amaurosicongenitaleber.com - A great resource for information regarding Leber Congenital Amaurosis (LCA) and early onset retinal degeneration. http://www.amaurosicongenitaleber.com/pag2.html

Focus Families - FOCUS Families provides "Information, Education and Support" T to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide. FOCUS Families has divisions in Germany, The United Kingdom and The United States of America - www.focusfamilies.org

Optic Nerve Hypoplasia: A Guide for Parents
ONH Pamphlet

Pediatric Glaucoma & Cataract Family Association - www.pgcfa.org
This Canadian site aims to promote the quality of life for children with glaucoma and cataracts and their families.

Positive Exposure - www.rickguidotti.com - A not-for-profit, organization whose innovative programs challenge the stigma associated with difference and celebrates the richness of genetic variation with positive images and powerful life stories.The program is a unique partnership between visual arts, genetics, mental health and human rights driven by former fashion photographer Rick Guidotti and Diane McLean, MD, PhD, MPH.

Mega-Sites

Blind Readers Page - blindreaders.info

DB-Link: National Information Clearinghouse on Children who are deaf-blind -www.tr.wou.edu/dblink

IDEAPractices (Individuals with Disabilities Act) - www.ideapractices.org

V.I. Guide: A guide to internet resources about visual impairments for parents and teachers - viguide.com

VisonConnection - www.visionconnection.org

Newsletters

Organizations

American Association for Pediatric Ophthalmology & Strabismus (AAPOS) - www.aapos.org

Association of Blind Citizens - The Association of Blind Citizens has established the Assistive Technology Fund. The Assistive Technology Fund (ATF) will provide funds to cover 50% of the retail price of adaptive devices or software. The ABC board of directors believes that this program will allow blind and visually impaired individuals access to technology products that will have a significant impact on improving employment opportunities, increase the level of independence and enhance their overall quality of life. www.blindcitizens.org/assistive_tech.htm

Carroll Center for the Blind - The Carroll Center serves the needs of blind and visually–impaired persons by providing rehabilitation, skills training, and educational opportunities to achieve independence, self–sufficiency, and self–fulfillment and by educating the public regarding the potential of persons who are blind and visually–impaired. www.carroll.org

Fidelco Guide Dogs - A non-profit organization based in Bloomfield, Connecticut that breeds, raises and trains German shepherd guide dogs to be placed with blind men and women. www.fidelco.org

Guide Dogs for the Blind - Guide Dogs for the Blind creates partnerships that can have an impact on safety, independence, confidence, and inclusion through companionship and teamwork. www.guidedogs.com

Hadley School for the Blind - The Hadley School for the Blind offers more than 90 distance education courses to eligible students completely free of charge. From "Braille Literacy 1" to "Birdsong Tutor," you can select from a wide variety of Hadley courses. You can study in the comfort of your own home at a time convenient for you. Course materials arrive in the mail or online and for students in the U.S. and Canada, instructors are just a toll-free call away. www.hadley-school.org

Lions Club International - Nearly 1.4 million Lions members in 193 countries and geographic areas answer the needs that challenge the communities of the world. Lions tackle tough problems like blindness, drug abuse prevention and diabetes awareness. www.lionsclub.org

Lowell Association for the Blind - LAB is a non-profit, community based organization dedicated to working with the blind and visually impaired. Established in 1923, the Association has been serving the Greater Lowell (MA) / Merrimack Valley community for over 75 years. - http://www.lowellassociationfortheblind.org

National Family Association for Deaf Blind - The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. www.nfadb.org/

New England Ophthalmological Society (NEOS) - www.neos-eyes.org

Northeast Regional Center for Vision Education (NERCVE) - Northeast Regional Center for Vision Education (NERCVE) is an established center within the Institute for Community Inclusion that is academically affiliated with the University of Massachusetts Boston, Graduate College of Education. UMass Boston is New England's only academic center for preparing Teachers of Students with Visual Impairments and Orientation and Mobility Specialists, two key specialties which assist people with visual impairments achieve their goals of high quality education, seeking employment, and traveling independently. http://www.nercve.umb.edu

Prevent Blindness America - www.preventblindness.org

Schepens Eye Research Institute - www.schepens.com

Vision Council of America - www.visionsite.org
To create awareness of the value of vision care and to grow the eyewear market through education, forums and expositions, industry statistics ad data, technical standards, and advocacy.

Vendors

ABLEDATA: Information on Assistive Technology - www.abledata.com/

Amazon - amazon.com
Audio-books on CD or cassette.

SKI-HI Institute: Sensory Impaired Home Integration - www.skihi.org/index.html
Provides a range of resources in early home interventions

 

 
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